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Whooping should be banned beause it excludes deaf people, Nation Union of Students say

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Whooping should be banned beause it excludes deaf people, Nation Union of Students say

It just wasn't meant to be — you never forget but you move on. We didn't tell anyone for a while. Although I didn't want to be too confident, I had a good feeling it would go well. And the pregnancy was brilliant. I didn't even have morning sickness. And when we had the first scan and saw the little heart, the size of a pea, that was fabulous. Teddy pictured was born by emergency caesarian on September 15 this year, six weeks premature.

Joanne and her fiance Steve White, 43, were not expecting him so soon Then things took an unexpected turn. They sent me immediately to hospital. So I missed it all. The paediatric team were incredible. And when I saw him, under a UV lamp in special care, I cried. It was a mix of joy, worry and the shock of it all.

I cried, too, of course I did. He's placid, sociable, strong and determined,' says Joanne. Usher syndrome is rare — onlypeople in the world have it — but it is genetic, so there was a tiny chance Teddy could have inherited it.

He looks at people when they talk. And now we've had a hearing test that has confirmed everything is fine. Joanne has Usher syndrome, a rare genetic condition which, since her late 20s, has been progressively robbing her of her vision 'Of course it's a relief — we wanted him to be as healthy as possible — but we would have coped well if he was deaf.

I still intend to teach him British Sign Language — Steve has been learning it too. She has never allowed her disabilities to impede her. She had speech therapy from the age of three, and learnt to lip-read with such success that it is easy to forget that for 40 years she had no notion of what the human voice sounded like.

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Then, when given a guide dog after she was registered blind in her late 20s, Joanne kept him long enough to realise she could manage without him. So he was given to a recipient with greater needs. But how does she cope alone with Teddy when Steve is working nights? Until now, at bedtime she has removed her cochlear implants — which work by bypassing damaged portions of the ear to stimulate the auditory nerve directly — and retreated into silence.

It's challenging because I hear every single little sound. But it's also a comfort. I like being able to hear Teddy. I heard unfamiliar noises like the central heating pipes going, 'tick, tick, tick' — something you don't hear in the day.

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I had to ask Steve what it was. I do the first night feeds, then express some breast milk so Steve can take over in the early hours and I can sleep. We're a great team. I'm constantly aware of everything going on around me.